Seattle Rare Disease Fair Virtual Conference, 2022

We hope you can join us for the Seattle Rare Disease Fair Virtual Conference, 2022!

What:

The Fair and Summit aim to educate, engage, and inspire our community about the importance of rare disease research. Our goal is for all attendees to know how they can support accelerated research in rare diseases.  We want to unite all stakeholders involved in rare disease research. We strive to bring a diverse representation of people to the Fair including pharma, biotech, institutions, researchers, legislators, payers, patient advocates, and patient organizations. At the Fair we are pursuing ways to understand, analyze, and response to the needs of the rare disease community with that hopes to improve the quality of life for patients.

When: Friday May 13th and Saturday May 14th, 2022

Agenda: TBD

Where: Virtual (Link will be sent out the day before event)

May 13th- Fair

This year the Fair will be broken up into sections, Diagnosis, Access, and Treatments. Additionally, this year our scientific talks will be on cardiovascular rare diseases.

May 14th- Summit

The Summit workshops will focus on ways we can share and turn stories into meaningful impact. At the Summit we will also have workshops on coping strategies.

Hosted By: Born a Hero Research Foundation and Seattle Children’s Research Institute