We hope you can join us for the 2023 Fair & Summit on May 5-6. 2023!


The Fair and Summit aim to educate, engage, and inspire our community about the importance of rare disease research. Our goal is for all attendees – including a diverse representation of patient advocates, patient organizations, pharma, biotech, government institutions, researchers, legislators, and payers – to better understand how they can help with ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.

When: Friday May 5th and Saturday May 6th, 2023

RegisterClick here

Where: May 5th will be a hybrid event both in-person in Seattle, WA and accessible virtually. May 6th will be a virtual event.

We would like to thank all our sponsors for making this possible!

For sponsorship opportunities email us at or