We hope you can join us for the 2023 Fair & Summit on May 5-6. 2023!


The Fair and Summit aim to educate, engage, and inspire our community about the importance of rare disease research. Our goal is for all attendees – including a diverse representation of patient advocates, patient organizations, pharma, biotech, government institutions, researchers, legislators, and payers – to better understand how they can help with ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.

When: Thursday, May 4th (Reception), Friday May 5th and Saturday May 6th (Virtual), 2023

Register: Click here

Agenda: Download here


  • May 4th Evening Cocktail will be held 4-6pm at Old Stove Brewing Co., 600 W. Nickerson St. North Queen Anne, Seattle, WA.
  • May 5th will be a hybrid event both in-person in Seattle Children’s in Seattle, WA and accessible virtually. Kids are welcome and both breakfast and lunch will be provided!
  • May 6th will be a virtual event

We would like to thank all our sponsors for making this possible!

For sponsorship opportunities email us at or